Wiregrass baby battles rare disease while becoming a social media celebrity

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DOTHAN, Ala. (WDHN) — Sullivan James, better known as Baby Sulley, has captured the hearts of social media users worldwide through his Disney-inspired name, fashionable duds, and his incredible battle against a rare disease.

“People talk about his cheeks and his eyes and his little dimpled chin and the red hair,” said Alaina Deshazo, Sulley’s mother.

Born on June 2, 2020, Sulley has spent his entire life bringing joy to others.

“He’s just the full package,” Alaina said.

In the beginning, Alaina regularly posted pictures of Sulley on social media. It wasn’t long before people wanted to see even more Sulley news.

“Finally, enough people asked and I was like ok, I’m going to start this page, ten people are going to like it, it’s never going to grow,” Alaina said.

Today the “Tales of Sullivan – Sulley Monster” Facebook page has over 3,000 likes with people from all over the world following Sulley’s story.

“That’s really good to hear that he can make people smile or forget about everything else that’s going on in the world for just a minute and live in his joy,” Alaina explained.

Oftentimes Sulley is seen in Tik Tok videos and outfits of the day but his followers also see another not-so glamorous side of Sulley’s life.

During her pregnancy, Alaina was diagnosed with Hyperemesis Gravidarum, a rare condition found in pregnant women that causes extreme nausea and vomiting.

“My body was kind of breaking down from everything,” Alain told WDHN. “My doctor was fantastic, we had the best care, [but] he was very concerned for my safety and Sulley’s so we made the decision to induce at 34 weeks.”

Half a year later, they were back in the hospital.

“He just kept getting worse,” Alaina said.

Many hospital stays later, Sulley was diagnosed with pulmonary hypertension or PH. According to the Mayo Clinic, PH is a rare disease where high blood pressure affects arteries in the lungs and in the heart.

“He has what he calls desats so his oxygen levels drop,” Alaina said.

Just as scary, Sulley is super susceptible to viruses. Something as simple as a cold could cause major damage.

That’s why Sulley’s Facebook page has become a mix of chubby cheeks and PH awareness.

“I’ve had other people with their babies and their kids that have pulmonary hypertension or other illness reach out to me and it’s just really a great community to lean on each other. It’s been a big help.”

To follow Sulley’s adventures, visit his Facebook page here.

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